Miracles

I prayed and prayed for a miracle this Christmas. It’s been a long while since I had a new trick. Not some grand, Hallmark-type, earth shattering miracle, just a little movement or change. (Anything.) 

Christmas came. Memories were lovingly created. Carols festively sung. Family happily gathered. Wrapping paper carelessly torn and bagged. Yummy treats voraciously ingested, (and multiple pounds added.) Joyous times were had by all. No miracle. At least, not the one I hoped for. 

But, my faith is not lost.

I know, for a fact, that we can earnestly hope, pray, wish, and yearn, but the answer might still be “no.” Our mission (if we choose to accept it, just kidding, we have no choice) is to take the hand we are dealt, and make it a winner. The way to be happy with our circumstances is to positively accept where we are placed and bloom where we are planted. I am not saying we should mindlessly settle for what we’ve got, but with a perfect brightness of hope, work and strive to make things better. The big things we must learn to accept in our lives is the here and now. (It is what it is. Right?) In that acceptance, know that the difficult situation we are enduring is for our good, even if it appears to be very bad at the time. Our ultimate test is not derived from our successes, but from our set-backs and the way we react to them and what we learn from them.  🎶The sun will come out tomorrow,🎶 even if “tomorrow” may take many years to come. 

So I didn’t get my miracle.

There were miracles though. I was there to see my two grandsons celebrate their first Christmases. I saw the beauty of a crisp, icy snowfall. I beheld the magic of excited Christmas morning discovery. My family and I got to our parties safely. I saw the birth of a very special baby still being celebrated thousands of years later. I witnessed selfless love all around, as people served me. (Just to name a few.)

Miracles abound if you have eyes to see them. 

I Can’t Be That Old?

It’s the truth. I turned fifty today! Where did all that time go? I feel thirty. Mr. Clock just keeps on ticking. I recollect all the good times and bad times. I wish I could’ve fast forwarded through the bad times, but I guess that how I attained my experience. All my “times” contributed to make the me who I am today.

I also played a little retrospective of my life (in bed this morning,) and I understand now, 

It’s all about friends.

From my first friends (my parents, siblings, extended family,) to my school friends, my church friends, my neighbor friends, my friend through my jobs, my in-law friends, and most recently my health care friends. My very best friends, my husband and kids, have stuck with me through it all. I can’t imagine the loyalty it has required! My wish is that I somehow could’ve stayed in touch with more of those friends, but hey, life leads us all in different directions.

I also have regrets. (Don’t we all?) Words left unsaid, projects not finished, time wasted. But, I can’t cry over spilt milk. What’s done is done. All I can do is live my life fully so I won’t have any further regrets. I undoubtedly received a second chance. (I guess I need to have a pivotal Christmas Carol end scene. With all the yelling, hugging, and running. Maybe not the running.) I have enjoyed some wonderful times in my life. I cannot even begin to list them, I’ve experienced so many happy times. I’m thankful for that. I have more to come.

A few weeks ago, we made the arduous trek to Disneyland. My group decided to celebrate my “birthday” at Goofy’s Kitchen at the Disneyland Hotel. I wore a tiara, and everyone including six Disney characters sang Happy Birthday to me. It was incredibly fun, and I felt so special. I told Mickey I was forty years younger than him. He just answered in sign language like all the characters do.


To sum it up: I have a lot of life left. I have stuck around to see my grandkids. I can’t look back, only forward. God gave me a second chance. I better do all I can with it. You don’t need some life changing event to 

Live your life to the fullest

Use my experience. (I’ll share.)

I’m old. Not the end.

What I Have Learned Two Years Post Stroke


Let me just say, a stroke is a great big momentous learning experience. One I would have gladly rather passed on, but God had different plans for me. Sometimes I wonder if I was too complacent in my sweet little life. But I am positive, beyond a shadow of a doubt, I needed to learn some thing(s).

Patience is not a virtue, but it’s a necessary trait.

Throughout all of my numerous daily tests of patience, I have learned that 1) it’s hard; and 2) it is necessary to show kindness to those who serve you. Patience is not only sitting by, waiting, but how you wait. Is your reaction in a complaining, ornery fashion, or with understanding, accepting, and, well, patience. (It the only word I could think of!) 

Patience is also about picking your battles. I am cursed with perfectionism. I consider it a curse since I haven’t been able to act on my straightening urges personally. (And I find I get this urge quite often!) Someone in my precarious situation requires much assistance with my everyday needs. What do I choose? My helpers, hired or relations, only have so much goodwill in them. So how can I ask them to straighten a curtain or fix a picture frame? So I patiently overlook petty imperfections.


Then there is the huge obstacle in having patience with ourselves. We are the hardest on ourselves. It’s just human nature. Having the only the use of one hand and arm and the inability to walk has tested my patience in countless instances. (Aaaaaih!) Think about how many thing we do that requires two hands? The use of a zipper, reading a book and turning pages, reaching far items, clasping a necklace, doing your hair and makeup, practically everything! Trying to be independent and endeavor to do simple things is a massive test of my already paper-thin patience. I try. I try, sometimes inexhaustibly. It can be maddening, but, man, it is fulfilling to ultimately achieve a task I put my mind to. Then there are times when I finally cut my loses, bite my lip, and ask for help. Attitude is the name of this game. If I lose it, I’ve lost the game. I can’t be hard on myself. It is what it is.

Our world is a beautiful place.

The view from my home is extraordinary. I live near the mountains. Whenever I visit the near unaltered version of what the world was at first, I marvel at the love my Heavenly Father has for me. He knows me. Our awesome landscape is just one of the many evidences of His love. My husband, son, and his girlfriend took an ATV ride up the mountains the other day. (We had to plan it on the first snow day of the year. It was seriously cold!) Ohhh! The fall foliage was awe inspiring. To some of us, looking with the right eyes, it was humbling.
Life has it’s ups and downs.
I seem so normal on this blog. I appear to have it all together, but I am sure a therapist would have a field day with me. (Some day’s, Satan has a firm grasp on my emotions.) One day, I am feeling positive and happy. Glad to be alive. Another day, negativity and frustration cloud my thoughts, and I wonder why I must experience all this. I understand it’s not just me who experiences this emotion. That’s exactly why we desperately need faith, something to hold onto. (Like a lifesaver. No, literally a lifesaver!) We need to utilize our faith (no matter in whom we place our faith) to weather even our toughest storms. (I sure wish my “rain” would stop.)

Family is everything.

I can’t even begin to think about where I would be without my family. I have to laugh when I recall part of that saying: “Someday you’ll be changing your parents.” My family has done things that are simply unimaginable. They would win that game “Have You Ever?” They serve me food first, help me dress and put on my shoes, get in my wheelchair, and on and on. My husband has sacrificed, well, everything for me. I can’t even imagine his stress level. He is by my side, always. I am so blessed for his unwavering loyalty. I might not express it enough, but my love and gratitude for them is unwavering and endless.

We must never cease showing gratitude.

Many countless people (or rather earth angels) who have prayed for me, rendered service, visited me, contributed (large and small,) and shared a kind word. I would fight anyone, to the death, who states there is no kindness left in the world. I possess indisputable proof. There is absolutely no way I can repay, directly or pay forward, all of the selfless charity in my behalf. I can only live with gratitude in my heart. I can’t take anything for granted when I almost had it taken away from me. It is so incredibly true that the attitude of gratitude is in the way one lives. It shows to others through the way we act daily. (You’ve either got it, or you don’t.)


God wants to see me and all of us happy. Our trials are given to us to teach us. If we don’t learn from our setbacks, we dropped the ball. It is difficult to behold those hidden blessing until we are far away from trial. They are there. Some call them tender mercies. I can not deny them. I will forever be changed. What I do with those changes is up to me.

Cover photo by Holly Glover, my neighbor, my friend.

Normal

What is normal to you? Day in, day out, running errands, shopping, commuting to work, kid’s activities, paying bills. I used to abhore normal. But now after almost 23 months in my altered state, (Yeah that’s right!) I crave the old normal. This summer has been a busy one, but not your normal summer busy. My day consists of Netflix, my iPad, grandson entertaining, a little sun, watching others have fun. Then I drink a little Dr. Pepper and eat a little somethin. My recliner is the most comfortable, until it’s not. Then get help and transfer to my motorized wheelchair for awhile, til my tailbone hurts. Get help to the bathroom. Then back to the recliner. (Rinse, and repeat.) Three days a week the normal rigmarole is interrupted with a trip for an hour of physical therapy. (Ooo, exercise. So exciting.) I would do more Amazon shopping if I had the money. Taking a life hiatus (via stroke) is not as fun as it sounds. I had to get away from this, even for a little while.

Me and my husband took a trip this last month up the pacific coast on i-1 from San Fran to the top of Oregon for our big 3-0. I planned and booked it all from my iPad. (As much as you can plan!) We imagined getting away would be fun. A road trip seems quite normal until my disabilities became all too apparent. We did behold many awesome sights. Numerous stops along the road required a quick hike down a hill to the beach. Nope. If you can access a beach, try riding on the sand in a wheelchair! Not possible, or quite hard. And most so-called handi-capable bathrooms, well we’ve seen bigger, lets just say that. Every time I wanted to disembark the vehicle to take in a vista, my husband had to retrieve the wheelchair, bring it around, then help me into it. Then take in the sights and do it all again. (Not just your normal hop out and run.) And try taking a picture one handed! Assessible rooms are difficult to find. (I think people get them just for the increased floor space!) Since I require extra supplies, the nightly hotel move-in (when we finally did secure one) was a ginormous task for my hubby. (Sure wish I could’ve helped.) Vacations are hard. Add an air-bed and all my extra stuff to the mix! Every morning he had to get me up, shower me, dress me, feed me, and replace all the stuff (and me) back into the van! (Thanks hun.) I did figure out how to do my own hair and make-up. (Men are useless that way.) More travelogue to come.

As we spent countless miles on the road (usually windy and slow,) I would look at other people with their first-world problems (like the need for gas or food,) seeing them so careless and free, and think, “Do they know how good they’ve got it?” I tried to use this get-a-way to “get away,” but the real facts of my life would always return to haunt me. 

Things can change very quickly. 

Enjoy your normal. Don’t take it for granted. Even though it seems so… normal. Appreciate it. Bask in it. (Summer joke.)

Breathe

I would start with line from a song. (But I couldn’t choose from the 76 songs just entitled “Breathe!”) Holy Cow, breathing easily and without labor is not something I take for granted anymore! Those who are on oxygen can sympathize.

I experienced oxygen, a ventilator, and I possessed a ‘wonderful’ trachea after the stroke. (Wonderful is a sarcastic term, but it did successfully keep me alive so I can’t totally dis that God-forsaken contraption.) I know what it’s like to struggle for every breath. The ventilator assisted me at first. While I was on oxygen and the trach, I was tethered to that cumbersome tank. Lines, tubes, tanks, machines. Seriously, it was a three-ring circus. Luckily, I had a few Respiratory Therapists who were gung ho and tapered me off quickly. 

I had the trach (a hole in my neck with pipey-tube stuck in it) for four and a half months, and I prayed the incessant coughing would just stop. With a trach, I followed an approximately twenty minute cycle of clear and smooth breathing to increasingly mucused clogged, making the intake of oxygen difficult to impossible until I would either cough it out or, at the worst, I called them to manually clear it out. I would wait for help while fighting to draw in air. (Ughhh! Not a pleasant process! Not to mention the strap choking you to keep it on!)

When the clueless doctor told me near the first of December, (in 2016,) I would have it many more months. He triggered my stubborn obstinance. (I couldn’t speak with it, but the actual words on my lips were, “Baloney!”) From that day on, I self-started the ‘Trial,’ which meant I was required to wear it totally capped shut for three days with no clearing or any assistance. (Not an easy task!) If I could successfully do that, they would yank it out. You forget how to breathe by yourself when you have a piece of plastic helping for months. About a day into wearing a cap, completely closing the airway, frequently coughing it off, and shooting it across the room, the Therapist said, “Oh, you are serious about this!” She told me there was a trach cap that screwed on. (Thanks for that!) She officially started the ‘Trial.’ So really, I endured five days with the weekend. It was not a walk in park, but I was going to prove that doc wrong. Sometimes I came close to quitting and giving up, but I was h—-bent on getting it removed and returning to a facility near home before Christmas. When they did remove it they covered it with a bandage, and I would have to hold it or the bandage would raise up and down. I felt like a frog! 


I guess if breathing means that much – you’ll do anything.

Now, about a year and a half later, my breathing is quite normal, but a bit on the shallow side. Every so often I take a huge catch-up breath. It sounds like I’m sighing. (I am not exasperated or bored. I’m just taking a big breath. Sometimes it might be mid-sentence. That can be awkward.) I must be careful when I eat, and occasionally I cough for no reason. (I suspect it’s due to a trach scar inside my throat.)

Therefore, every breath I take is appreciated. It’s a blessing from my Heavenly Father. My friend calls the trach scar an ‘Angel Kiss.’ I think she’s right.


Don’t take your breaths for granted.

Beginning Again

At this time of year, my thoughts turn to the fresh new beginnings that come with Spring and Easter. Those age old bulbs in the ground are poking their heads out of a blanket of dirt, and revealing their inner colors as new baby sprouts. How they emerge and mature is up to them. The water and sunlight are available, they just have to stretch out and “Be all they can be.” (No pressure.)

I feel like that bulb. So much is at my disposal. God has given me so many abundant blessings, the air in my lungs and the nourishment to my body and the spirit in my soul. Even though on the outside my body might seem outwardly limited, I feel like I have a reset. (Like a good shake of the Etch-a-Sketch.) 

If there’s a will, there’s a way! 

My life seemed perfect before the stroke. I had a great job, new car, comfortable home, awesome kids, the definition of success. Right? But was I truly growing? God had different plans for me. I have grown in very different ways. I have learned very different lessons. I can start over, figuratively. I know I can do anything with enough faith and positivity.

We can all start over.

Whatever it is that is holding us back can be forgotten. Something that was done to us or something we’ve done – can all go away. Through Christ’s atonement, we have the opportunity to repent (or forgive) and start over like that buried little bulb. Whether it is a massive thing or seemingly small thing, this year can be the best. (The most bestest.)

This Spring, join me in a new beginning. It’s going to be wonderful!

Walk It Out

I haven’t given up yet. I know I look drunk, but, no I wasn’t plastered. (Although I’ve been tempted!) 

Here’s a video of me walking with assistance after about 18 months! I did the entire 150 foot track, without sitting, in about five and a half minutes! I am a little more brave to lean to the left against the walker. With the use of my right hip I can get the right (mostly paralyzed) leg to advance. Standing up feels great! (Since I sit a lot!)

We might laugh too much, but it’s serious business! (Shooting for five minutes!)


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